{"id":13582,"date":"2026-05-19T19:19:09","date_gmt":"2026-05-19T17:19:09","guid":{"rendered":"https:\/\/sijopuctutambeepilep.org\/blog\/la-asociacion-en-el-parlamento-de-cataluna-14-5-26\/"},"modified":"2026-05-19T19:28:46","modified_gmt":"2026-05-19T17:28:46","slug":"la-asociacion-en-el-parlamento-de-cataluna-14-5-26","status":"publish","type":"post","link":"https:\/\/sijopuctutambeepilep.org\/es\/blog\/la-asociacion-en-el-parlamento-de-cataluna-14-5-26\/","title":{"rendered":"La Asociaci\u00f3n en el Parlament de Catalunya (14-5-26)"},"content":{"rendered":"\n

\ud83d\udc9c \ud835\udc04\ud835\udc25 \ud835\udc29\ud835\udc1a\ud835\udc2cado jueves \ud835\udfcf\ud835\udfd2<\/strong> tuvimos la oportunidad de participar en la \ud835\udc02\ud835\udc28\ud835\udc26isi\u00f3n<\/strong> \ud835\udc1d\ud835\udc1e \ud835\udc12\ud835\udc1a\ud835\udc25\ud835\udc2ed \ud835\udc1d\ud835\udc1e\ud835\udc25 \ud835\udc0f\ud835\udc1a\ud835\udc2b\ud835\udc25\ud835\udc1a\ud835\udc26\ud835\udc1e\ud835\udc27\ud835\udc2d \ud835\udc1d\ud835\udc1e \ud835\udc02\ud835\udc1a\ud835\udc2d\ud835\udc1a\ud835\udc25\ud835\udc2e\ud835\udc27\ud835\udc32\ud835\udc1a<\/strong> para explicar de primera mano las necesidades reales de las personas que convivimos con la epilepsia y sus familias.<\/p>\n\n\n\n

Durante la comparecencia presentamos una propuesta de \ud835\udc2b\ud835\udc1e\ud835\udc2c\ud835\udc28\ud835\udc25\ud835\udc2e\ud835\udc1c\ud835\udc22\ud835\udc28\u0301\ud835\udc27 \ud835\udc29\ud835\udc1a\ud835\udc2b\ud835\udc25amentaria<\/strong>
\u27a1\ufe0f Una \ud835\udc1c\ud835\udc1a\ud835\udc26\ud835\udc29\ud835\udc1a\u00f1\ud835\udc1a \ud835\udc1a\ud835\udc27\ud835\udc2e\ud835\udc1a\ud835\udc25 \ud835\udc1d\ud835\udc1e \ud835\udc2c\ud835\udc1e\ud835\udc27\ud835\udc2c\ud835\udc22\ud835\udc1b\ud835\udc22\ud835\udc25\ud835\udc22\ud835\udc33\ud835\udc1a\ud835\udc1c\ud835\udc22\u00f3n<\/strong> sobre la epilepsia.
\u27a1\ufe0f \ud835\udc0f\ud835\udc2b\ud835\udc28\ud835\udc2d\ud835\udc28\ud835\udc1c\ud835\udc28\ud835\udc25o\ud835\udc2c \ud835\udc1e\ud835\udc1d\ud835\udc2e\ud835\udc1c\ud835\udc1a\ud835\udc2d\ud835\udc22vo\ud835\udc2c \ud835\udc2e\ud835\udc27\ud835\udc22ficados<\/strong> con enfermeras escolares durante todo el horario lectivo.
\u27a1\ufe0f \ud835\udc14\ud835\udc27\ud835\udc22dade\ud835\udc2c \ud835\udc1de \ud835\udc1e\ud835\udc29\ud835\udc22\ud835\udc25e\ud835\udc29\ud835\udc2c\ud835\udc22\ud835\udc1a<\/strong> accesibles en todo el territorio.
\u27a1\ufe0f M\u00e1s investigaci\u00f3n<\/strong> y equipos estables especializados.
\u27a1\ufe0f \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc22\ud835\udc29o\ud835\udc2c \ud835\udc26\ud835\udc2e\ud835\udc25\ud835\udc2d\ud835\udc22\ud835\udc1d\ud835\udc22\ud835\udc2c\ud835\udc1c\ud835\udc22\ud835\udc29\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc1a\ud835\udc2bes<\/strong>
\u27a1\ufe0f \ud835\udc12o\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2de \ud835\udc1e\ud835\udc1c\ud835\udc28\ud835\udc27\u00f3\ud835\udc26\ud835\udc22\ud835\udc1co<\/strong> a las entidades de epilepsia.
\u27a1\ufe0f Informaci\u00f3n clara sobre \ud835\udc1ay\ud835\udc2e\ud835\udc1da\ud835\udc2c, \ud835\udc1derechos e \ud835\udc22\ud835\udc27\ud835\udc2c\ud835\udc1e\ud835\udc2b\ud835\udc1c\ud835\udc22\u00f3n \ud835\udc25\ud835\udc1a\ud835\udc1b\ud835\udc28\ud835\udc2b\ud835\udc1a\ud835\udc25.<\/strong><\/p>\n\n\n\n

Tambi\u00e9n trasladamos una realidad que no puede seguir pasando desapercibida: la \ud835\udc1a\ud835\udc2d\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc28\u0301\ud835\udc27 \ud835\udc2c\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22\ud835\udc1a no puede depender del c\u00f3digo postal, y las familias no pueden cargar solas el peso de la epilepsia y la \ud835\udc22\ud835\udc27\ud835\udc1c\ud835\udc25\ud835\udc2e\ud835\udc2c\ud835\udc22\u00f3n<\/strong> \ud835\udc1e\ud835\udc1d\ud835\udc2e\ud835\udc1c\ud835\udc1a\ud835\udc2d\ud835\udc22\ud835\udc2f\ud835\udc1a y \ud835\udc25\ud835\udc1a\ud835\udc1b\ud835\udc28\ud835\udc2b\ud835\udc1al ha de ser real<\/p>\n\n\n\n

Queremos dar las gracias especialmente a la vicepresidenta del Parlamento, D\u00aa. @raquelsansguerra<\/a> , por ayudarnos a hacer posible esta comparecencia y por la visita al Parlament de Catalunya @parlamentcat<\/a> . Tambi\u00e9n agradecer a todos los miembros de la comisi\u00f3n de salud por adherirse a nuestra campa\u00f1a “Un peque\u00f1o gesto por un gran cambio”.\ud83d\udc9c<\/p>\n\n\n\n

Tambi\u00e9n gracias a todas las personas asistentes por la voluntad de trabajar para sacar adelante estas propuestas.<\/p>\n\n\n\n

Esperamos que este sea solo el comienzo de cambios reales que permitan mejorar la calidad de vida de todas las personas que conviven con la epilepsia. \ud83d\udc9c<\/p>\n\n\n\n

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\ud83d\udc9c \ud835\udc04\ud835\udc25 \ud835\udc29\ud835\udc1a\ud835\udc2cado jueves \ud835\udfcf\ud835\udfd2 tuvimos la oportunidad de participar en la \ud835\udc02\ud835\udc28\ud835\udc26isi\u00f3n \ud835\udc1d\ud835\udc1e \ud835\udc12\ud835\udc1a\ud835\udc25\ud835\udc2ed \ud835\udc1d\ud835\udc1e\ud835\udc25 \ud835\udc0f\ud835\udc1a\ud835\udc2b\ud835\udc25\ud835\udc1a\ud835\udc26\ud835\udc1e\ud835\udc27\ud835\udc2d \ud835\udc1d\ud835\udc1e \ud835\udc02\ud835\udc1a\ud835\udc2d\ud835\udc1a\ud835\udc25\ud835\udc2e\ud835\udc27\ud835\udc32\ud835\udc1a para explicar de primera mano las necesidades reales de las personas que convivimos con la epilepsia … Leer m\u00e1s<\/a><\/p>\n","protected":false},"author":7,"featured_media":13562,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[190,126],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/sijopuctutambeepilep.org\/es\/wp-json\/wp\/v2\/posts\/13582"}],"collection":[{"href":"https:\/\/sijopuctutambeepilep.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sijopuctutambeepilep.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sijopuctutambeepilep.org\/es\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/sijopuctutambeepilep.org\/es\/wp-json\/wp\/v2\/comments?post=13582"}],"version-history":[{"count":2,"href":"https:\/\/sijopuctutambeepilep.org\/es\/wp-json\/wp\/v2\/posts\/13582\/revisions"}],"predecessor-version":[{"id":13585,"href":"https:\/\/sijopuctutambeepilep.org\/es\/wp-json\/wp\/v2\/posts\/13582\/revisions\/13585"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/sijopuctutambeepilep.org\/es\/wp-json\/wp\/v2\/media\/13562"}],"wp:attachment":[{"href":"https:\/\/sijopuctutambeepilep.org\/es\/wp-json\/wp\/v2\/media?parent=13582"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sijopuctutambeepilep.org\/es\/wp-json\/wp\/v2\/categories?post=13582"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sijopuctutambeepilep.org\/es\/wp-json\/wp\/v2\/tags?post=13582"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}